General Guidelines regarding going to see your Doctor
Some people may feel nervous once they get home after a stay in hospital, but your consultant will not mind you asking about when it is appropriate to contact them directly (via their specialist nurse) regarding new symptoms and changes in medication. It can be helpful too, to be open and honest with your GP, and to try and make appointments with the same doctor if you are in a practice where more than one doctor is available. This can help your GP to become more familiar with your condition (because it is so rare), and to help you both build up a positive and supportive relationship. This is particularly important when you have an ongoing illness that can give you a variety of different symptoms and general aches and pains.
Even as you learn more about your condition, and you become more familiar at recognising possible flares of your disease, it is unfortunate that infection can blur the picture. This may lead you to mistakenly feel that the symptoms are down to your vasculitis, when they may be due to an infection. Either way, it is advisable to consult with either the vasculitis team that you have been referred to, or the local doctor who is supervising the management of your vasculitis.
It is not uncommon for patients to become very low in spirits about 4-6 months after a severe attack of vasculitis. This usually passes but in some cases may require expert counselling or even an anti-depressant tablet for a short while.